tag:blogger.com,1999:blog-5355255231647612784.comments2020-12-22T02:00:59.257-05:00Ability MaineAbility Maine Staffhttp://www.blogger.com/profile/11473042177436456838noreply@blogger.comBlogger18125tag:blogger.com,1999:blog-5355255231647612784.post-42955830761045123532013-11-24T14:47:42.135-05:002013-11-24T14:47:42.135-05:00Good work Michael.Good work Michael.Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-5355255231647612784.post-89902527529729146672013-06-10T19:08:13.864-04:002013-06-10T19:08:13.864-04:00Poignant, timely, and excellent advice for address...Poignant, timely, and excellent advice for addressing such important and impacting concerns.<br />Very inspiring!FREERIDERtoddhttps://www.blogger.com/profile/02475138451457608077noreply@blogger.comtag:blogger.com,1999:blog-5355255231647612784.post-17851443229159354982013-05-04T22:52:25.673-04:002013-05-04T22:52:25.673-04:00Hi Jesse. Thank you for your comment! If there are...Hi Jesse. Thank you for your comment! If there are any sarcoidosis awareness, support, or advocacy events coming up in Maine or online, please drop us a line so we can cover them! Thanks. -SharonAbility Maine Staffhttps://www.blogger.com/profile/11473042177436456838noreply@blogger.comtag:blogger.com,1999:blog-5355255231647612784.post-31214252296649528532013-05-04T14:47:47.712-04:002013-05-04T14:47:47.712-04:00Regarding Sarcoidosis Awareness....
We review a va...Regarding Sarcoidosis Awareness....<br />We review a variety of Sarcoidosis Awareness Ribbon marked items in an effort to bring support to the "no cause no cure" disease...dedicated to bringing reviews and testimonials for some of the most popular Sarcoidosis Awareness gifts and items on the market to help you in deciding to support the Sarcoid community thru Purple Ribbon marked items. http://sarcoidosisawarenessribbon.blogspot.com/Anonymoushttps://www.blogger.com/profile/16217174482791683909noreply@blogger.comtag:blogger.com,1999:blog-5355255231647612784.post-81422196509244225122013-01-27T22:11:14.648-05:002013-01-27T22:11:14.648-05:00this really sucks and all of it is very true to wa...this really sucks and all of it is very true to walmartsAnonymousnoreply@blogger.comtag:blogger.com,1999:blog-5355255231647612784.post-63403788259760024372012-11-01T13:22:28.446-04:002012-11-01T13:22:28.446-04:00Hi Anandhi!
Thanks for commenting! I'm sorry ...Hi Anandhi!<br /><br />Thanks for commenting! I'm sorry it took me a while to approve your comment. Sometimes comments come in while I'm working on other things or asleep, but I really appreciate you reading the blog and commenting. I also checked out your Disability News link. I hope you'll comment and come back!Ability Maine Staffhttps://www.blogger.com/profile/11473042177436456838noreply@blogger.comtag:blogger.com,1999:blog-5355255231647612784.post-23934081141438183582012-11-01T06:03:59.576-04:002012-11-01T06:03:59.576-04:00Hey, nice site you have here! Keep up the excellen...Hey, nice site you have here! Keep up the excellent work!<br /><br /><a href="http://www.choice-international.com//" rel="nofollow">Disability NEWS</a>Anonymoushttps://www.blogger.com/profile/06786582114752914451noreply@blogger.comtag:blogger.com,1999:blog-5355255231647612784.post-88490374436852983832012-10-17T02:18:30.229-04:002012-10-17T02:18:30.229-04:00Thank you very much for making this comment. I sin...Thank you very much for making this comment. I sincerely hope that ADAPT is successful in retaining the waiver programs, Medicaid, and other necessary supports. It's definitely a scary prospect. I appreciate the work you're doing as a member of ADAPT.Ability Maine Staffhttps://www.blogger.com/profile/11473042177436456838noreply@blogger.comtag:blogger.com,1999:blog-5355255231647612784.post-22664178056915950892012-10-16T23:58:31.368-04:002012-10-16T23:58:31.368-04:00I am a member of PA ADAPT who receives services so...I am a member of PA ADAPT who receives services so that I can remain in my own home, rather than an institution. If the governor succeeds in dismantling our waiver programs, I will be forced into an institution with limited community involvement, and many other limitations that I don't want/need. Please, anyone who is able to support ADAPT in any of the methods listed above. Thank you for your support. I am from western PA.Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-5355255231647612784.post-1006504525415373172012-10-16T10:55:39.293-04:002012-10-16T10:55:39.293-04:00@geminijlw
Thank you for your comment! I've be...@geminijlw<br />Thank you for your comment! I've been following it on Twitter, but of course it's not the same as being there in person. First-person accounts are very helpful. And if you would like to support ADAPT's efforts, as a citizen on the Commonwealth, calling your rep, senator, and governor telling them what you saw and why you support the protest of the cuts in Medicaid would be a terrific support of their efforts. If that's something you'd like to do. Ability Maine Staffhttps://www.blogger.com/profile/11473042177436456838noreply@blogger.comtag:blogger.com,1999:blog-5355255231647612784.post-57904165152691622082012-10-16T09:39:18.553-04:002012-10-16T09:39:18.553-04:00I WAS THERE IN THE CAPITOL AND COULD NOT BELIEVE T...I WAS THERE IN THE CAPITOL AND COULD NOT BELIEVE THE ANIMALISTIC BEHAVIOR OF THE CAPITOL POLICE TOWARDS HANDICAPPED PEOPLE. AS A PA RESIDENT I WAS HUMILIATED THEY ACTED SO APPALLINGLY. I APOLOGIZE TO THOSE BRAVE CITIZENS OF THE US.geminijlwhttps://www.blogger.com/profile/10682263853166104648noreply@blogger.comtag:blogger.com,1999:blog-5355255231647612784.post-39044736777876415392012-09-08T09:50:02.612-04:002012-09-08T09:50:02.612-04:00YAY MIKE!!!!YAY MIKE!!!!Heather Whetherhttps://www.blogger.com/profile/05427869382497235267noreply@blogger.comtag:blogger.com,1999:blog-5355255231647612784.post-64359230742940584012012-09-07T13:24:51.661-04:002012-09-07T13:24:51.661-04:00Heather,
Thank you very much for your thoughtful ...Heather,<br /><br />Thank you very much for your thoughtful comment. I, too, refer to myself as an uppity crip at times!<br /><br />-SharonAbility Maine Staffhttps://www.blogger.com/profile/11473042177436456838noreply@blogger.comtag:blogger.com,1999:blog-5355255231647612784.post-71750885854223067322012-09-06T17:17:10.238-04:002012-09-06T17:17:10.238-04:00i like to say TAB because mental and cognitive dis...i like to say TAB because mental and cognitive disabilities are physiological. My PTSD is wired in my brain,a body part for example. And everyone has been/will be temporarily disabled, with the flu,a broken arm, or depression at some point in their lives. Very few are lucky enough to ever experience NO physical issues that limit their ability to function. For myself I use crip as I have cerebral palsy which was invisible as I was younger but now is noticeable. I like the radicalness of it, like the word queer. ACT-UP used these tactics to take back their power and to shock people out of conventional stereotypes. However I like saying "people living with MCS" now the way we say "people living with AIDS." I was misdiagnosed a long time ago as "bipolar" and I would say "I have a diagnosis of bipolar" since the term had no meaning. Someone else I met says "I am affected by bipolar symptoms." <br /><br />I like all the diversity we have now in choosing OUR own names. When dealing with activists who are educated I ask they say differently abled. I may not be able to do some things they can do but can they read Tarot, draw portraits, write grant proposals, and find safe non-mordant needing dyes safe for MCS in their yard? I can do a lot they cannot and I want that seen. With social services I stress disabled to get them to accommodate me with the ADA. I hate being seen as a label though of "disabled" as I feel like it says "useless" "more work" "God, what does this person want now?" (I was in social work on the other side of the desk once!)<br /><br />I found something from a UK group circa 1974 that stated "we have impairments; society disables us." I agree. Some of my abilities are impaired, others are heightened (I have a 156 IQ). Both have disabled me in this society. Having been feral and a homeless street kid whose parents abandoned her gave me some strengths and some weaknesses. I am disabled by the lack of kindness and sensitivity and INCLUSIVITY of "community" events. I am disabled by the community's anger at having to think about "special needs," when they have the special needs to wear toxic poisons. My needs are basic - clean air and food and water. No stairs. A comfy chair. <br /><br />Sometimes I feel lopsided with some extremely high level skills and some extremely low level skills. I am elevated/needs ignored or degraded/forced to beg. Having my sense of identity is hard. I had so many misdiagnoses, like so many with MCS or a brain disorder due to the ambiguity. I was treated differently by every doctor depending on the code. If they never saw me and read I had cerebral palsy I was talked down to, if they read bipolar they just said "don't kill yourself and take these pills that make you sick", if they read PTSD they assume I was in the war, if they read vasomotor rhinusitis, they say minor allergies, if they read dyspraxia they say "what is that?" if they read ADHD they expect me to be spacey when I have hyperfocus, if they read fibromyalgia, they say exercise and no pain meds, if they read CO poisoning syndrome they don't have any idea what to expect.<br /><br />Finally I learned the codes are just for billing insurance, they didn't MEAN anything. I don't have anything you can test for and nothing I have really is understood by science aside from CP. They change all the time! It's not who I am.<br /><br />I expect to have the same accessibility to everything in life as anyone else. I accommodate all the semi-functioning drunk, unstable, in denial people pretending I am the one with the problem. I have a lot of amazing skills since I got MCS, I could be hired as a petrochemical sensing human! I have been tested and know how great I am, how strong and courageous and compassionate.<br /><br />My current fave is "uppity crippled lady." LOL!Heather Whetherhttps://www.blogger.com/profile/05427869382497235267noreply@blogger.comtag:blogger.com,1999:blog-5355255231647612784.post-33422386017419441972012-09-03T10:04:30.647-04:002012-09-03T10:04:30.647-04:00I hope a lot of people will follow AbilityMaine, s...I hope a lot of people will follow AbilityMaine, since it has some pretty rough and tumble articles as well as Breath & Shadow to give us some appreciation of the finer arts as well. Carry on!Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-5355255231647612784.post-75284863091888701612012-08-03T23:43:13.418-04:002012-08-03T23:43:13.418-04:00Kudos to Mike on this excellent piece. I was minim...Kudos to Mike on this excellent piece. I was minimally involved with ACT-UP in the early 90s, and just reading the review, I felt catapulted right back to those times. Can't wait to see the film.Sharon Wachslerhttp://sharonwachsler.blogspot.comnoreply@blogger.comtag:blogger.com,1999:blog-5355255231647612784.post-59128042765171129402012-04-01T14:01:34.924-04:002012-04-01T14:01:34.924-04:00Thank you very much! We appreciate the <3. We h...Thank you very much! We appreciate the <3. We hope you'll spread the word and follow.<br />-SharonAbility Maine Staffhttps://www.blogger.com/profile/11473042177436456838noreply@blogger.comtag:blogger.com,1999:blog-5355255231647612784.post-18006161645731901072012-04-01T13:49:24.820-04:002012-04-01T13:49:24.820-04:00Great articles, both Mike's and Sharon's. ...Great articles, both Mike's and Sharon's. AbilityMaine rocks!Anonymousnoreply@blogger.com